Parenting is challenging.
Every. Single. Day.
If you have one kid with any kind of medical issue and/or special needs, the challenge gets more intense.
Inside This Mom’s Mind
I didn’t realize that sometimes, after some years, that we can adjust to our kids’ issues so much that we can almost forget about them.
Sometimes. It depends on the kid.
It’s not that I forgot about Lily’s delays, but maybe I did forget that delays aren’t just during baby/toddlerhood.
Once she aged out of First Steps (early intervention) at three and went to preschool, I thought “okay, we’re good”
The person that completed her exit eval reminded me: “She may be behind in some areas as she gets older, but we don’t know which.”
She had a difficult time learning how to read. Even after she got good at it, she still asked to read to me, Matthew or my mom. These days, she’s reading “Dork Diaries” books, so I’d say she’s on track.
As you’ve read in other posts, she’s had further issues that pulled me to put her in therapy.
You can read those posts Special Needs Round Two
A Big Breakthrough
As of now, Lily is 4’9″ and weighs about 160 lbs.
Her pediatrician is concerned and as a result, she’s had labs drawn to see what’s up.
Of course, her thyroid is basically nonfunctional. I wonder where that came from? Mine was bad before losing half of it, but Lily’s levels are basically bottoming out.
Don’t worry, she is seeing a pediatric endocrinologist in early November. Her pediatrician is certain she will end up on the same meds that I am on.
We’ve changed her diet (still in progress) and she got referred to a dietician. The very nice dietitian asked if she could discuss Lily with the Occupational Therapy department and…
Here I am, filling out paperwork for an OT eval.
I know she doesn’t need speech therapy. She’s loud and there is no misunderstanding her. In that area, you can definitely tell she’s almost 12. The attitude is real.
In the years since First Steps, I guess we have adjusted the best we can.
Lily hates exercise, new foods, and most things yucky, except slime. She LOVED slime. At 11, she still can’t ride a bike. This doesn’t mean we haven’t tried. Julian even tried to help her ride a bike- he’s been on one since he was four.
While filling out the OT paperwork, I’m reminded that even though she isn’t a baby, she still has issues that are impacting her health. Her daily life.
How do I feel?
Tired. Overwhelmed. You know, the usual. I have many thoughts, some found in The Deeper Thoughts of a Special Needs Mom
Trying My Best
Lily has ADD, minus the hyperactivity part. (Julian took that part and RAN with it.) I try my hardest to remember this when asking her to do things and when she’s in trouble. I forget that she is a bit behind her peers emotionally and socially. Being her isn’t always easy.
But yet, I entirely screw up. I lose patience. I get upset with her. I apologize and try to move forward. Some days are better than others.
Parents aren’t perfect, no matter how hard we try. We have to give ourselves some room.
The things I forget come back at the weirdest times!