5 Facts About SVT

Parenting is challenging. Sometimes we are given those challenges out of nowhere. Cameron has been my “easiest” kid so far but yet gave us the biggest scare.

A Bit Of Background

Cameron was diagnosed with SVT in June 2015. This was discussed a bit in The Hardest Parts of Parenting

His diagnosis came after a game of basketball that led to an ER trip and scaring everyone in his elementary school in the process. Heart issues are very common in both Matthew and my families.

Cameron has been back to the hospital a few times since, due to more (smaller) episodes and for a small procedure to stop the episodes in 2017.

Due to some small episodes, he has had to be on a heart monitor for a month twice. I yelled at different customer service people over shipping complications with the stickers both times.

Mama Bear does make appearances from time to time, everyone. I try to be a nice person but when you mess with my son’s health…

Luckily, we live near a hospital that is amazing and Cameron has a cardiologist that spent his many years in school learning how to take care of kid-sized hearts.

The monitor came off both times without any issues being noted. He only goes back if anything comes up and as of yet, nothing. I will karate chop anyone, however, that even thinks of giving him anything caffeinated.

This includes energy drinks- no Monster drinks at this house. He currently takes two medications for migraines. One helps with his heart, so we consider it a two-for-one. The other is just for migraines.

Hospital pic

What IS SVT? Five facts

The last time I talked about this, I either said to Google it (because Google knows all) or I left a link, but this time, I’ll educate.

I decided on this because one of my greatest nightmares with Cameron is him collapsing during a basketball game and dying like I’ve seen numerous times on the news.

Most kids that die in that way during a sports game had a previously undiagnosed heart condition- either Long QT syndrome or sometimes SVT. Please bear with me, everyone, I’m not a cardiologist.

  1. SVT is an abbreviation for supraventricular tachycardia

This means that the electrical system in your heart works incorrectly, which can lead to an irregular heartbeat, chest pain, and in some cases, loss of consciousness. In Cameron’s case, he passed out in his first episode because his blood pressure dropped. His school immediately called me and an ambulance.

I couldn’t make it to the school in time, so the principal rode to the hospital with him, where I met them. In his second and more severe episode, he didn’t pass out, but he couldn’t walk and I had to get a wheelchair because I couldn’t carry his 12-year-old self in. I did make him stay awake in the car. He was in the hospital for four days that time.

The last few episodes weren’t as serious- but still not fun.

2. SVT can happen at any time, but episodes can happen years apart or never again.

I didn’t like hearing this part at all. It scared the hell out of me. I was afraid to let Cameron do anything for a while after his diagnosis because I was scared it might trigger an episode but he’s got to live his life, right?

He went from June 2015 to March 2017 between episodes before his procedure. That’s not bad. He’s had a few small ones since the procedure but nothing that required hospitalization.

3. There are some known triggers, but then it can also happen while you’re doing nothing or can wake you up from sleep.

Cameron has had smaller episodes during migraines, which is why he is now on medication for both.

He is also not allowed to drink caffeine except for small amounts if he needs it during a migraine, and he stays well hydrated during the summer. That seemed to trigger both episodes. The last episode was triggered by Ultimate Frisbee in gym class and I think he may have been overheated.

4. SVT can stop on its own sometimes requires action to slow the heart rate.

During one of Cameron’s episodes, his heart rate was well over 200 and I was petrified. I had to stand in the hallway, peeking through the curtain as the nurses and doctors worked on him.

There are small maneuvers that you can do on your own, like blowing through a straw or blowing on your thumb, but sometimes those aren’t effective. In the ER, most patients are given medications through IV.

Cameron had to be given medication three times before being transferred to a downtown hospital, where he was in the ICU for three days before spending a fourth in a regular room.

5. There is a procedure that can stop SVT.

Cameron was eligible for an ablation. His two episodes were severe enough that his cardiologist suggested it as soon as he went into the ICU. Cameron was awake but sedated, and his cardiologist went into his heart, found the tissue that was causing the bad heartbeat and burnt it.

Cameron stayed overnight and was home the next day. He missed a couple of weeks of gym class, but I don’t think he minded that very much. It has a high success rate, but Matthew and I were both very scared something would go bad.

I mean, it is small heart surgery. It went well, and Cameron is an active kid. He can play all the basketball he wants.

SVT can be a scary condition. I still worry when Cameron is outside playing with his friends or at school- his school is well informed. He knows what to do if his chest starts hurting and so does everyone that he spends time with. If you want more information on this condition please go here.

Talking About Pride

Coming Out of the Closet

I decided to use an actual definition for this one, because I understand that not everyone may be clear on this one. I also think it’s the respectful thing to do. I’ve got friends and family members in the community, so I’m very clear on what this term means. Planned Parenthood- Coming Out Definition

It’s a hard process. Some people choose to wait until a certain time, some never do. It’s an individual choice, and should be respected. If someone comes out to you, please respect that person’s decision to tell you, even if it isn’t within your own values. It takes a lot to say “I’m a lesbian” or “I like guys”, or however it is said.

There is a lot of fear in coming out, however. Many people fear these things:

  • not being accepted. If there is a history of hearing homophobic slurs throughout life, it’s going to be hard to go against that.
  • getting cut off financially/becoming homeless- especially in teens and college students. Some wait until after college for this reason.
  • anxiety, depression or other mental health issues worsening afterwards due to above issues.

There is so much more support these days for the LGBTQ+ community. I feel there is a long way to go in the legal world, but it’s coming.

Marriages were a huge issue a couple years ago and I shed tears when they became legal everywhere. I believe some states are still trying to fight that one. Macklemore had it right when he said in “Same Love”- “No freedom until we’re equal/ Damn right I support it”.

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Pride Events

Have you ever been to a Pride event? I have been to quite a few. Louisville is a big city and every June, there’s a huge Pride event. The event has lots of food (my main requirement for anything), music and a lot of other fun things.

I usually see a lot of friends while I’m there. It’s so much fun. If you’ve never been, and you’re comfortable going, go. If you aren’t sure if there is an event near you, try looking on Google “pride events” and your city or the nearest city to you. Not everyone lives in or near a big city.

These events began as a way for people to get together, have fun, be themselves, meet others and not fear being judged or getting hurt. Of course, this didn’t always go well but over the years, the events have become safer. There will always be those that oppose these events.

The Kid Version

I have a friend, Kate, that is happily raising a son, with her wife, Christy. Lucas just turned two, and he is the happiest toddler that I’ve seen in a long time.

I hope he stays that adorably happy. They got married in Hawaii a few years ago and the pictures were adorable. I know they have struggles like everyone else, but they’re one of the cutest couples I’ve ever known. Lucas is like every other toddler out there- he just has two loving moms.

I wrote a post not long ago, LGBTQ Kids: A Guide for those who need a bit of help figuring out how to navigate the waters of having a child that identifies as LGBTQ.

This is becoming more common than people realize and I wanted to bring that to your, my readers’, attention. If you know someone who could benefit from it, feel free to send them the link.

I think it could help parents who aren’t sure what to do. We don’t always know what to do as parents, or even aunts, uncles, and so on. That’s okay. That’s why we ask others for ideas and read up.

Kids are pretty smart. They can tell who accepts them and who doesn’t. They’ll stay closest to those that do. All kids, no matter their sexuality, need someone who loves and accepts them exactly for who they are. They don’t need or deserve ridicule for who they love. They have enough to worry about.

Mental Health Issues in The Community

Anxiety and depression are common in many people. When you are struggling with hiding who you are (or feeling like you have to), losing someone you love and having to start over in a small pool of people and not feeling fully accepted,things can get very hard.

Drugs, alcohol and self-harm are three coping skills that are used by this population. Sometimes it can be deadly. There are therapists that specialize in LGBTQ issues.

This may be a good time to look into how you can become an ally or otherwise support the LGBTQ people in your life. How can you be an ally?

Pics courtesy of Unsplash

LGBTQ Kids: A Guide

Parenting is full of challenges. We face them everyday- food allergies, mental and/or physical disabilities, bullying, and the list goes on.

There’s a point in life in which our kids decide to date and none of us are ever ready for that- it freaks us out. This happens as early as 12 or 13 or can be years later.

Most of us don’t blink an eye at who they will date, because we just assume they will date someone of the opposite sex, right?

What Happens When They Don’t?

I’ve already thought this one out. I don’t care. As long as my kids find someone that loves and supports them, I honestly don’t care who they date. Race isn’t an issue for obvious reason, and that’s not the topic of the post.

I just want my kids to be happy with whoever they love. That’s it. If Lily brings home a girl and they get married, then I get to watch them say yes to the dress or whatever they wear.

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Being a teen is hard enough as it is today. There’s so much pressure to get great grades, fit in, get into a good college, work, and so on.

When you’re a 16 year old girl who likes other girls, it gets a bit harder to be “normal”. You wonder if others would still like you, even your own family. You grew up hearing slurs about homosexuals and you know it’s not going to be great if you tell your parents.

Then there’s the boys who want to date you and you know they won’t stay away forever. All you want is to find a girl that likes you and that you like back, but how does that work? It’s confusing and scary. Bullying is a thing, and LGBTQ teens have it harder.

Stats hrc.org, kids, LGBTQ

Coming out is scary. It’s rough. The average age is 17, much younger than it used to be according to a British study found on Everyday Feminism

Teens are smart- they know the risks of telling their families something this big. Some families are accepting, and some families are ready to kick their kids right out of the house, which is a shame.

It’s heartbreaking to know that some kids feel they have to hide this part of themselves, because it can lead to drug and/or substance abuse issues, along with mental health issues, like depression and anxiety. A kid can only mask so much for so long. It does get better, time goes by, people do open their minds to new things.

Sometimes the people they think will have horrible reactions will have the opposite reaction. The negative messages are also an issue- they can send a message that a kid is a bad person, or is “going to hell”, etc. This can just add to already negative thoughts that a kid can have about themselves.

It gets better when LGBTQ kids find others like them- online, in school, through other friends, in other ways. It does help that many LGBTQ kids are out to their friends and classmates. Those friends and classmates, for the most part, are accepting, and can be a great source of support.

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What Can Parents Do?

  • Let them know you love them. I’m pretty sure this is the biggest part of accepting your child, no matter what. They need to know this. The scariest thing to many LGBTQ kids is coming out. Once they know they have parental support, there is a huge sense of relief. Be as open minded and present as you can be, even if you aren’t quite sure what to do.
  • Research. Parenting requires a lot of thinking and reading. We don’t always know what to do. That’s why the Internet exists. There are quite a few websites for parents of LGBTQ kids, including Hopkins Medicine
  • Talk about it. This doesn’t mean hound about their sex life, because that’s definitely awkward for everyone involved, but let them know you are there when they need you, if they have questions, etc.
  • Remember this is not a “phase”, there is no “cure”, and there is nobody to “blame”.
  • Watch out for bullying at school. It’s a reality that LGBTQ kids are bullied at school and other places. If you need to, get involved with the school. You can read Bullying: A Closer Look for more ideas and resources.
  • Talk to someone if you feel overwhelmed.

Female couple, acceptance

The world of teenage dating can get pretty complicated, this is just a different road. It’s possible to walk together with your child. Cheer them on!

Pics courtesy of Unsplash

Statistics pics courtesy of hrc.org

Info can be found on:

Everyday Feminism

Hopkins Medicine

Men and Mental Health

As kids, most boys were told not to cry. They were told to be tough, to be “real men”, and those men didn’t cry and show emotions. They hid their feelings, no matter the cost.

This piece of advice has had terrible consequences, leading to high substance abuse rates, violence against women and children (among others) and other issues. When you can’t let out your feelings in a healthy way, it tends to come out badly. It also leads to higher rates of depression, anxiety and lack of self-care.

Why Men Don’t Seek Help

Everyone needs to take care of themselves, physically and mentally. This is a well-known fact. Men have a harder time acknowledging this because of the stigma they face in doing so. This will be covered in a later post, so stay tuned, but here are a few examples of what many men fear when going for help:

  • Being labeled as “weak”, “sick”, or any number of labels.
  • Having to be vulnerable. I can say from personal experience that starting therapy is rough. You are opening up with some of your worst demons to someone you just met..many men (and women) are not having it.
  • Being judged by those who know that they are getting help.

This information is in The Stigma of Mental Illness

Untreated mental illness can also lead to suicide, which has a higher rate in men, and men usually use more lethal means.

This fact breaks my heart each time I read it. Suicide in itself is heartbreaking and has far-reaching consequences.

As a mom, I’m teaching my kids that it’s okay to cry. My sons know it’s okay to have emotions. In light of numerous teen suicides in the news and those that I have lost to suicide personally, I feel a huge responsibility to watch out for my kids’ mental health. It’s HARD to be a kid these days.

Cameron started taking daily naps when he started middle school, and at first, I thought it was a phase. Then I worried about his heart because his SVT is pretty severe and can tire him out easily.

He told me that he felt fine, that school was just tiring him out. My next question was if anything was bothering him, and thankfully, he said no. Cameron is a pretty chill kid, but you never know.

Julian is pretty quiet, but he knows where Mom is if he needs to talk. So does Lily, but she is NOT the quiet type. The point of this is, please talk to your kids, no matter how rough it may be. Just check in.

What can we do for the men in our lives?

  • Check in with them. Especially if something major has happened to them recently- a death in the family, job loss, etc.
  • Be gentle. Most men facing a mental health issue don’t want to be forced into talking. Matthew’s parents divorced a few years ago, and there was a lot of drama involved. He’s not a huge talker, so I had to let him talk about it at his own pace.
  • Encourage him through whatever he does, if anything. If he decides to seek help, he needs to know you’re behind him 100%.

Of course, if things are going downhill quickly, please seek immediate help. You can go to the nearest ER or call 911.
Resources:

AFSP

Psychology Today

NAMI

Real Stories of a (Former) Mental Health Worker

Note: There is this gorgeous law (HIPAA) that prevents me from using real names in this post, and so I will use an asterisk when needed to indicate that names were changed. I will also not use the actual names of the facilities I worked at for similar reasons, because I’m not trying to get sued. I’m a blogger and stay at home mom, not a millionaire.

This month is Mental Health Awareness Month. This post is dedicated to my former co-workers (especially my Resource Team friends) and mental health professionals everywhere.

It’s a rough profession and deserves a lot more respect than it gets. It’s also very rewarding, which is one of the many reasons why I am glad that I chose psychology as my field of work.

A Few Definitions

I know not everyone understands these terms, so here are some definitions to help you out a bit:

Mental Health Technician/Mental Health Worker/Mental Health Associate: these are all pretty much the same, depending on where you work. I’ve been called all three.

1:1: a patient that requiring someone is with them at all times, whether they are asleep or not, sometimes both. This can get very tedious, and sometimes you have to stay within arms’ reach of the patient for safety reasons.

Code: this is not the code you see on TV. This code is for physical backup when things get out of hand, mainly when a patient is being aggressive, destructive or a combo. These are called for a variety of reasons, but these are the two most common ones.

Resource Team- an amazing team of people trained to work on every inpatient unit in a mental health facility. They are responsible for knowing everything about all the units, and they catch hell for messing up. It’s a great team to be a part of because they stick together and you never know what will happen next or where you will be. It’s also very stressful.

Checks/Rounds: ensuring patient safety by visualizing patients every 15 minutes.

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(I’ve seen C.Diff, and it’s ugly, especially in non-verbal kids. YIKES)

Let me set up the story for you…

In June 2007, Spalding University granted me a Bachelor of Arts in Clinical Psychology. Many don’t know this unless you ask, see it in my author bio or on my resume.

It took me five years, a change in major (my first major was in apparel design and merchandising- fancy wording for fashion design), school and two kids, but I finally graduated. I also completed a mandatory 100-hour practicum.

I was not prepared for my first job out of college. I had gotten a job as a Mental Health Technician at *Clear Lake Hospital and I was a bit nervous but ready to start my career.

I started the week after I finished classes. (I walked June 2, but still to finish my last class, which was sheer torture.) I did fine in orientation but was not happy when I found out that I was placed on the geriatric unit.

What? This facility didn’t let you pick what unit you went to, but I had hoped I wasn’t going to get put on a unit I didn’t like. I was not thrilled about being placed on this unit, known as the *Willow Tree Unit. I wanted to transfer immediately, but there was a policy preventing me from doing so for 6 months. I decided to wait it out.

Two months into that wait, I discovered that I was pregnant with Lily. My OB/GYN told me that I would be better off where I was because the pregnancy was not an easy one from the beginning.

A different unit would be a faster pace and could result in more issues with my pregnancy. I decided to stay put so that Lily would have a better chance of being okay. I ended up liking the *Willow Tree Unit.

The staff was nice- I was the youngest tech on first shift. Once word got around that I was pregnant, the nurses and other techs took care of me.

One afternoon, my shoes became untied and I couldn’t reach them because my belly was huge. I burst into tears and one of my fellow techs tied them for me. She understood the struggle- she’d been in my spot two years before.

I didn’t get to finish out the pregnancy on that unit- I went into preterm labor at 31 weeks (on Cameron’s 3rd birthday, of all days) and my OB/GYN told me that I would have to stop working or go on light duty, basically a desk job.

I chose the desk job because we needed the money. I went to medical records for all of five weeks or so. The ladies there were nice and began a betting pool on when Lily would show up. Lily shares a birthday with one of the ladies in the office, which everyone found hilarious.

Thanks to Kentucky state budget cuts, the *Willow Tree Unit was closed down while I was on light duty, and when I came back from maternity leave, I was sent to an acute care unit. I was better suited for that unit and stayed there until I left in June 2008 for a counseling position in Indiana.

The Real Fun Begins

In late 2010, I was ready for a new and closer to home position. I found another Mental Health Worker position at *MidRiver Regional Hospital. This time, I was able to pick where I wanted to go, because it was in the application. I would be on the Resource Team. It sounded very interesting and kind of fun.

I was absolutely right. Orientation was a bit boring- but that’s where I met Josh (Jake’s older brother) so I call that a win. I had to shadow for a couple of weeks on each unit- a couple of days with another worker, and then I was unleashed.

The very first day was a day that is forever etched in my mind- I was on *2West, a unit that was then used for kids from 12-18 with autism and other developmental disabilities. It was super loud, wild and some of the kids were way bigger than me.

What did I sign up for?

I took a huge deep breath, looked at my assignment sheet and kept going.

I spent two years on the Resource Team. It was a lot of fun- full of laughs, friends, and a few mishaps. I’ve run after people that eloped, including one that I chased across a busy street along with another worker. The kid ran off at a hospital and we did catch her. I’ve been punched in the head. I even caught a stereo cord to the face.

I was with a 1:1 and the patient was very upset about her Justin Beiber CD was repeatedly skipping. I told her that maybe it was time to try a different activity, and tried to unplug the stereo. She picked it up, then dropped it, and when I went to pick it up, she hit me in the face with the cord.

A code was immediately called and I was taken off the floor. I was taken to the main nursing office to get my face looked at.

I called Matthew to get me from work, and he took me to a nearby hospital- I ended up with three liquid stitches. You can barely see the scar today. I took the next day off because my eye was so swollen that I had a hard time seeing out of it, and let me tell you, tetanus shots are not fun.

As for the patient, she was so upset when she found out what happened to me, she became hysterical. I was one of her favorite staff members. She had to be medicated to calm down. She apologized the next time she saw me.

While I was working at this facility, things were not that great at home. Julian wasn’t diagnosed until late 2011. I was struggling a lot internally with both anxiety and depression. You can read about those events in A Letter to my Anxiety and Depression and Looking At the Bright Side

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I was able to lose myself in my work. I loved being able to help others and work with great people. We had a lot of fun on the good days and on the not so good days, pull together and make things work. That, to me, is the definition of teamwork.

In March 2013, I had a mini-stroke. My neurologist suggested afterward that I needed to start looking for ways to lessen or eliminate stress in my life. By this point, I was ready to leave the Resource Team- it was getting too stressful for me. Some people leave after months, some people stay the entire time they are at the facility.

I started thinking about which unit would be a good fit. I was pretty much done with adults- that was where the bulk of my work had been, and I needed something different. I had realized that I really enjoyed the kids on *2West and the staff was great.

I’d volunteer to go there when other people didn’t want to go- it was a rough unit. I didn’t really enjoy cleaning poop off walls (who does? I can’t make this up, it really happens) but it had become my favorite unit.

It took a few months of waiting, but a position opened up. By then, I had met Jake, and that was his home unit. I applied, interviewed and got the full-time Mental Health Associate position. My Resource Team friends were sad to see me go (my friend Scott begged me not to go), but they were not surprised to hear where I was going.

It turns out that going to *2West was the best career move I’ve ever made. I loved it. Those kids were not always the easiest to work with- I’ve been kicked in the eye, had my hair pulled out in clumps, broken my big left toe twice and in the same way. It still doesn’t bend correctly. I’ve seen all kinds of naked kids. I’ve left work scratched and bruised from multiple holds. I’ve gotten sick from these kids- strep throat can go through 20 kids fast.

I also learned a lot- how to sign (some), how to learn about a kid even when they are non-verbal. I learned that some families are worse than you can imagine and even the ones that look great are horrible.

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Autism is not seen as often in girls, but when it is, it tends to be severe. One of my favorite kids was a tall, thin girl named *Michelle. She was a runner and I got lots of exercise running after her in the halls. She was also non-verbal but showed her feelings by squeezing your hands.

She squeezed my hands every day to say “hello” and “goodbye” but if she was angry, she would pull on your arms while squeezing your hands. She was so much fun to work with. When she left, she bent down to hug me goodbye, and both *Claire (her behavior analyst) and I cried. That’s a very unusual thing.

Taylor Swift sing-a-longs were a regular thing and so were movie days on the weekends. We tried to make things as fun as we could for the kids. We took them outside and let them play as much as they were able to on the playground. We got the kids out of bed, fed them, got them through their days and back into bed- for some of them, we were more of a family to them than their own.

*Mason was a kid who saw us exactly like that. I met him while doing checks and he was in the shower singing “Baby Got Back”. He was hilarious, and once beatboxed to me about needing toothpaste.

However, he came from a family that didn’t treat him well, which contributed to some of the reasons he came to the facility. Once, I was planning an outing with another associate, and he asked us to take him and the other patients to a strip club. That did not happen, but we laughed hysterically after he left the room.

These kids were so funny, smart in their own way. I couldn’t have asked for better co-workers. Some days entirely sucked, but it was still a fun adventure. My last day there was September 2, 2015. I left after being told about Jake’s death, and I came back two days later to get my things and leave my nurse manager a note telling her I wouldn’t be back.

I couldn’t write this post without mentioning Jake, Austin, Scott (not the one mentioned earlier), Cisco or Colleen. I lost these co-workers while working with them or after and each loss was a bad one. They left behind families that loved them and patients that they touched. They worked hard (Cisco got electrocuted trying to keep a patient safe) and had a lot of love for their patients.

I’m retired from this line of work- thanks to my RA diagnosis. My rheumatologist would go ballistic. I am left with so many memories and friends. That’s what work and life are all about.

All pics are my personal pics except for one pin on my Pinterest board. Pinterest