Wonder women

My Experience with Body Image Issues

I’m 35 with three kids.

My body has been through a lot of changes.

The Mommy Bod

Before kids, which now seems like eons ago, I struggled with my looks and weight. I’m 5’2″ and not the most athletic type. I have curly hair which I used to hate. Growing up, I rarely saw models in magazines that looked even close to me. If I did, they were skinny with straightened hair.

I just wanted to look like everyone else but that was not possible. I couldn’t change my skin tone, hair or any other physical characteristics. I got busy with school and work but stayed at a decent weight. Over time, I even started liking my curls.

These pictures represent my weight loss and gain in the last few years. After kids, I got up to almost 200 lbs. I was diagnosed with Type 2 diabetes in late 2009 (which I no longer have thanks to diet, exercise and losing weight) and got serious about my weight. I wanted to be healthy for my kids.

A Sharp Turn

In 2013, that weight loss took a different turn. My anxiety kicked into overdrive because of the issues I was having with Matthew. I began thinking if I was skinnier, things would get better. I tend to not eat much when I’m stressed so this became a bigger issue. I would eat one meal daily for days on end due to stress.

Sometimes it felt like I was punishing myself in a way for not being the wife and mom I was “supposed” to be. I may have been punishing myself for making Matthew so angry. I also spent lots of time in the gym- at least an hour four days a week. I’d have done more if I had time.

At my lowest weight, which was August 2015, I was 125 lbs and a size 4. I was so small that my co-workers asked if I was sick. My doctor told me that my pancreas, already not able to produce all the insulin I needed, might give out entirely and result in Type 1 diabetes if I didn’t stop losing weight and pushing myself so hard. I’m not sure I cared.

I loved the way I looked- I finally fit into a string bikini but I was so nervous about it I didn’t want to take off my cover-up. (A friend yanked it off, but in a good way.) I don’t think Matthew cared either way- he had seen me before and after three pregnancies. It’s not like he saw me naked much at this point.

Jake was worried- one of his last worries about me was that I was too skinny. He told me I was still gorgeous but I needed to gain “like 5 or 10 pounds.”

Jake got his wish, but he didn’t live to see it. I gained 60 pounds after his death. I ate, drank and didn’t think about exercising for a long time. I was deep in a hole of grief and depression.

Comeback of the Curves

I stopped drinking and move around a bit more these days. My pancreas survived and it’s functioning quite well. Thanks to having RA, it can be a bit rough but I do what I can to exercise. One of my medications has a side effect that messes with my appetite but I’m not going to be upset if I lose a few pounds.

I don’t weigh myself- there isn’t a scale in my house. I’m not entirely sure what I weigh, my best guess is around 170. I’m a size 12/14. I’m okay with this. I’m happier, I’m funny again, I love food, I’m healthy as I can be, and I got my curves back. The second picture is me in Daytona Beach in August. I look much better.

I can’t say there was a moment where everything clicked and I stopped going so hard on my body. I was a little sad when I didn’t fit size small sweats in late 2015, but I had much worse things to deal with. While I was in therapy, I worked on how I saw my body. It’s been through a lot, and I realized I should have a lot more love for it.

There are three people that are on this planet because I grew them inside my body. I lived through a mini-stroke. I have two chronic health conditions but they are manageable. I’ve had three major surgeries (tubal, gallbladder removal and a partial thyroidectomy). I may have a few rolls but there are curves, stretch marks, surgery scars, and tattoos.

I still have bad days like every other woman but I remind myself of where I have been. I remind myself that I’ve looked a lot worse and that I’ll probably look different in a few years. I’m good where I am now.

Tips for Better Body Image

It can be very difficult to change how you feel about your body.

My helpful tips?

1. STOP LOOKING AT MODELS FOR VALIDATION.

I’ll confess, I’m a huge fan of Tess Holliday. She’s a plus-size model, and I love her message. I don’t look at her or other models anymore for what I should look like. I like her because she has amazing red hair, great makeup and #effyourbeautystandards is empowering. If you’ve never heard of her please look her up on Google. I like a handful of other models but for makeup and other reasons. Models work extremely hard to look like they do and it’s almost unrealistic for most of us to pull it off.

2. Remember what your body has done for you. Have kids? Even one kid changes your body permanently. If you’re a runner like my friend Lauren, there’s a lot of maintenance involved that I don’t want to imagine. She looks fantastic. I’m sure she will thank herself later in life for keeping herself in such great shape. (I hate running. I don’t even run to my mailbox.)

3. Realize that you are more than just what your body looks like. This may take a bit of work in the self-esteem department (lots of work for me) but it is well worth it. Everyone has interesting and/or quirky qualities about them that are likable besides what their body looks like. Do the work- make a Pinterest board of quotes, write in a journal about it. Talk to someone if you need to. The work will be worth it.

Have you had issues with body image? How did you work through it?

Quotes courtesy of Pinterest

My Random Musings

Adjusting to a New World

Many parents, myself included, envision parenting as this wonderful adventure in which kids develop at the pace they should, play instruments and/or sports, learn to drive, go to prom and all that great stuff.

But what happens when those things are altered because of a special needs diagnosis?

Cry a little

The Big Change

Some parents find out about their child’s diagnosis before or right after birth, in cases of Spinal Bifida, Cerebral Palsy and Down’s Syndrome. I know parents of kids with these diagnoses, and it has been life changing for these families. All of them have other kids without any special needs.

The adjustment is hard. I cried my way through Lily’s evaluation for First Steps the day before her first birthday, even though I knew something was not going right. I knew she needed more help than what I could give her. That story can be found in Special Needs Round Two . When her diagnosis of global delays was given, I was even more devastated. The blame game began. It took a lot of talking with Lily’s speech therapist, Denise, to realize that it wasn’t my fault that she was developmentally delayed. We are in the process of getting Lily re-evaluated. At ten, she is still showing signs of issues that we thought she had grown out of. Cross your fingers for us- we may need it.

In Julian’s case, it’s been a tougher road. His psychiatric nurse practitioner, Ann, once said that we have adjusted wonderfully as a family to Julian’s needs. I almost hugged her. I explained to her that it has not been easy and it remains a somewhat rugged path. My question is: Why not adjust? Julian is wired differently and that’s okay. If we didn’t adjust, he would feel badly about himself and I couldn’t bear the thought of this. It would also cause so much chaos for him that he doesn’t need or deserve. It would do the same for the rest of us. Why do that?

He needs the ability to feel okay about who he is, quirks and all. We’ve enjoyed watching him grow and finally develop a sense of humor. Every kid needs that, with or without a diagnosis. In a home with medical issues, this is a necessity.

I have made many mistakes in raising Julian (and his siblings). Even after reading up, trying many different things, therapy for both of us, getting Matthew on board and lots of burnt dinners in the process, things remain interesting. Julian is now 12 and puberty is kicking in.

Learning that your child has a medical and/or physical special needs diagnosis is complex. Some parents grieve the life they feel their child “should have had”. This is a rough one for me, as I’ve never done this. I can see this happening with kids with severe medical problems. A high school friend of mine has a child with spinal bifida and she lives a full life. Instead of being devastated and staying in a hole as some might, Shelly and her kids go out and do all kinds of neat things. Ryan is eight, and she is one of the coolest kids ever. She’s a tiny fighter. Some parents, like myself, are devastated and are not sure where to go next. Some fall into the “research pattern” and find all kinds of information to know exactly what to do.

This can be a great thing- I have read up a lot on Julian’s diagnoses and it didn’t hurt to work with kids with similar issues. (It did physically hurt some days, but that’s another story. I learned a lot from that job.) Some parents, sadly, go into denial. This can be damaging to everyone involved, and I highly recommend seeing a therapist, church member, or another trusted person. If it’s your partner, this can get really bad quickly, and I definitely know the pain of where it can go. Please do what you can to change that path. Talking can help. Easing your partner into information, appointments, and other things can help. Just don’t force them, because that can make things worse.

I recommend reading up, asking questions, and getting all the help from the medical community you can. The more information you have, the more empowered you feel to help your child. Julian’s been very lucky- he has had a great team from day one, because I wouldn’t let him have anything less. I’m a proud mama shark.

Never give up

It’s okay to feel different things- don’t let anyone make you feel different. Julian was diagnosed almost seven years ago, and some days I still feel overwhelmed. As of writing this post, I’m about to battle it out with his school over his IEP because it’s currently not being followed. Some days are better than others. Some days are absolutely great, some are so bad that you want to devour a liter of Cherry Coke, a bag of salt and vinegar chips and call it a day. (Okay, maybe that’s just me. I didn’t do all of that, but I considered it.) If you’re overwhelmed, write it out. Get someone to help you sort out your feelings.

Making The Best of Things

Daily life also changes. Depending on the diagnosis, your child may need assistance with everything, or nothing at all. This can become time-consuming and require an overhaul of your routine as you knew it. Food may need to be altered due to sensory issues- I live in a house with two kids with sensory issues, and I gave up on those battles years ago. Julian won’t eat french fries if he can see the potato skins or if they aren’t super warm. Lily won’t eat anything that resembles soup, any pasta that isn’t spaghetti, mainly because it looks different. Julian actually had a meltdown once over the shape of pasta my father in law used for dinner. These changes can be irritating to make, but they are necessary for the world our kids live in. I’ve learned to look inside Julian’s mind a bit, probably because of my work, and try to see the world as he does. It can get hard, but it’s worth it. Explaining this to others can get even harder, even your partner.

Small steps

It takes time to adjust- it won’t happen overnight. It takes time to learn how your child’s machines work, or how to get the wheelchair to fit in your van. Give yourself space to make those mistakes. I completely screwed up Julian’s 12th birthday party by inviting too many people, which cause him to shut down at the end, but I’m pretty sure he still likes me. He used to get mad at me when I would hold onto him with a death grip in parking lots and large stores, but he had a bad record of eloping. It was terrifying to have to run after a very fast 5 year old, especially in a parking lot. He was seven before I let him walk more than a foot or two away from me. (I never used a leash because I hate those things.)

If you’ve got a kid who takes things literally, you have to change how you talk to them. For example, I once told Julian to drop the jar of jelly he was holding after he was told not to eat anything. I was making dinner and he didn’t need to eat so soon before.

He dropped the jar.

Major mom fail.

Thankfully, the jar was plastic. That would have been an awful mess otherwise. Matthew and I have had to re-think things before we say them, because Julian thinks differently, and so does Lily, to an extent. We are still trying to figure out her thought patterns. She doesn’t quite think on a 10-year-old level, so we have to tread carefully.

Super parent

Final Thoughts and Tips:

If you have to buy things to keep your house, kid and car safe, do it. You’ll thank yourself later.

It really does take a village. I have friends that have kids with all kinds of physical/ developmental disabilities. A few have kids with autism, and they have been so helpful when I’ve needed them.

Being a parent of a special needs kid will make you a different person. I’ve fought for Julian since day one. Lily’s issues haven’t required so much of a fight, but I would do the same for her. It makes you tougher and less likely to take people’s crap.

Breathe and find something that makes you laugh. Comedy will get you through anything.

Get a binder and organize all of your kid’s paperwork. Julian and Lily have their own binders.

You are not alone, and get help if you need it. Take time for you, because your kids need Mom at her best. If you’re tired, sad and cranky, that’s not your best.

If you have other kids, let them be involved in adjustments. It’s not easy to be the sibling of a special needs kid. My kids have been pretty good about Julian, but it can get hard for us as parents. Cameron and Lily have a post about this in The Siblings’ Turn

Allow your child to live their best life. If they can do it- let them. My friend Laura Leigh’s son, Levi, is seven. He is in a wheelchair due to Cerebral Palsy, and he is an awesome kid. He smiles for days, gives his younger sister Presley wheelchair rides and loves school. I let Julian run cross country in the fifth grade and he loved it. We have a rule that his diagnoses aren’t excuses for not behaving. He does have bad days, but he doesn’t get to say, “I’ve got autism, so I get to act like that”, “I forgot my ADHD meds, that’s why I’m like this today”.

Most of all, love and accept your child the way they are. It might sound weird that I wrote that, but it is saddening that many parents don’t. Acceptance and love matters- it’s everything.

Quotes courtesy of Pinterest

Recommended Reading: The Spark: A Mother’s Story of Nurturing Genius

Twin Mummy and Daddy

Book Review- “The Spark:A Mother’s Story of Nurturing Genius”

Kristine Barnett wrote this book about her son, Jacob, and it is amazing. I’ve read it three times, and I’m still in love with it. Jacob is incredibly gifted and also has autism. He was diagnosed at two years old. Kristine and her husband were told that his autism was so severe that he would most likely never talk or even tie his shoes, but he beat the odds due to her dedication. She also ran an in-home daycare while raising him and his two younger brothers.

I identify with Kristine so much throughout the story- she and I both had small strokes at the age of 30, mainly due to extreme amounts of stress. Mine, of course, was brought on by a migraine, but it came from stress. To this day, I struggle with speech issues (aphasia- look that one up, it’s a lot of fun), short term memory loss and migraines. To find out more about my stroke and its impacts, you can read Invisible Changes

Kristine realizes very early on that Jacob (he is known throughout the book as Jake) is showing signs of something, but isn’t sure what. Her mother is the one that realizes that it may be autism and hands her a list of signs. Jacob was very fascinated with shadows, barely interacted with others, barely spoke and had other signs. I won’t spoil the story for you, but the shadow fascination leads to bigger things in the story. It’s pretty great. This kid’s very intelligent.

She has him evaluated and is devastated by the results. Her husband is in denial for a while but does come to accept the diagnosis.

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Julian was about four when we started seeing behaviors. I was still quite busy with Lily’s developmental delays and her assorted therapies at that time, so I wasn’t sure what to think. He became more aggressive and less of the affectionate, sweet little boy I knew. He stopped hugging us. We lost the big kisses he gave us at night. He began throwing what I thought were big tantrums. He would scream and yell at his siblings, and I became very worried. I was heartbroken and worried about what to do, what I wasn’t doing.

We had him evaluated- I was actually relieved to get a diagnosis. It gave me a better idea of how to help him. He was diagnosed with ADHD (severe, combined) and autism in late 2011. That story can be found in Looking At the Bright Side

He still won’t hug us, and I miss that. Julian’s got an adorable smile that everyone loves, and I offer him hugs when he is upset. I know he probably won’t take it, but he knows he can have one whenever he needs it.

Kristine tells the story of her family in a very relatable way. I believe that’s why I like it so much. Even if you don’t have a child or know one with autism, it’s a great book to read. You can tell that she is very dedicated to her family and work. She gives so much hope to the reader in her story, even during the not-so-great parts of their lives.

My favorite quote from the book is “Certainly people with autism are in our world. They’re just not thinking about the things we want them to think about.” This is so true! I’ve worked with a lot of kids with autism, and they think about a lot of things I would never think about. You would be surprised at the things they are capable of thinking about. They may not be able to verbalize it very well, or even at all, but they can still think of things we may not be aware of.

I also see this with Julian. We can be at dinner and watching the news and he’s thinking about a video he watched last week on YouTube. (I know this because I asked.) He once got an award for “Out of this world thinking” in elementary school. Let these kids, let all kids think and dream. You’d be surprised what they may come up with.

Pic courtesy of Google

Brilliant blog posts on HonestMum.com

Twin Mummy and Daddy

Broken Wings Part 5: What I Wish My Spouse Knew

What I Wish My Spouse Knew About Our Child With Special Needs

This series was inspired by a Facebook post I read six weeks ago. A member posted this question “Does having a special needs child affect your marriage?” Post after post, people shared examples of how their marriage was tested. Some made it, others did not. I always wanted to create a platform where people could talk and share their experiences, the good and the bad. I cannot thank my collaborator Wrae Meredith Sanders enough for her open and honest contributions. Whatever your decision is, I hope you know you’re not alone and you will make it.

This is the last part of this series. Please feel free to like, comment, and share.

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There are many things that I can look back on now and wish that I could change. I’m unable to change the damage that was done to our marriage- both of us did things that we regret but we have been able to move forward together.

If I’d known that we would disagree so much and loudly, I would have shut the door a little more. I would have stopped and asked for a break–this would have helped more than we realized at the time. I would have asked why we had to be right all the time instead of coming up with a compromise.

Julian Needed Us to Come Together, Not Fall Apart

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If I’d known then that I’d spend many nights crying myself to sleep for so many reasons, I would hit the rewind button. I would figure out each separate reason instead of letting it all become a big ball of depression.

I thought I was doing the right thing–fighting you for Julian’s needs. This turned out to be two evaluations, a diagnosis of ADHD (combined), traits of Asperger’s (later amended to High Functioning Autism) and medications. He also needed group therapy.

Moms are supposed to do what it takes for their kids, right? The only thing is, I did it alone. I didn’t listen to you. You didn’t want any of these things to happen because you were in denial. If I had known what to say and not be confrontational, I would have done it. But I didn’t. That’s where I went wrong.

I tried explaining, even in a way you could understand but that didn’t do it. In your family, disabilities aren’t real unless you see it. Julian has the kind you can’t see. You couldn’t see it, so it didn’t exist. This even applied when Julian almost broke my nose and I had to get X-Rays.

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I sought out ways to deal with the loneliness. When your husband is in denial and emotionally bashes you daily, you have to find a way to cope. I drank. That was not productive at all.

I went out a lot with people who turned out to not be good for me, you even tried to tell me, but I didn’t trust you enough to care. I worked out in the gym obsessively and lost 60 lbs. Even my doctor was concerned. I barely ate for days on end. This didn’t help my decision making.

What I Know Now

We worked hard to put this family back together. I still have problems opening up to you this day. I finished therapy two months ago. You were there from day one to the last and cheered me on the whole time.

During that time, Julian has grown, and he has done well. He finished group therapy and dealt well with a change in providers. He is going into the seventh grade after a few bumps adjusting to middle school.

You’ve become so supportive of Julian and I. When he has a bad day, I know I can tell you about it. You’re happy when he does well. Raising kids isn’t easy and we have three. Having a kid with special needs makes things a bit more interesting and sometimes difficult. I’m glad that both of us decided to make this work.

Thanks. I know Julian wouldn’t say it but I’m sure he likes his mom and dad being together.

Love always…

Wrae

What I Wish My Husband Knew About Being A Special Needs Mom

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Dear Husband,

Never at the age of forty did I dream I would marry, then become pregnant a few months later. It took us both by surprise yet we agreed to go on this wild journey called parenting. I had a little more experience with raising a child as my daughter was fourteen when we tied the knot.

I was fat, tired, and cranky–everything a pregnant woman is and probably will be as long as little humans continue to beautifully invade our personal space. There were precautions because of my age and health, but I was sure I would go full term.

But I didn’t. He came nearly three months early. After a long stay at the hospitals, oxygen tanks, and therapy, our baby boy could live a normal life.

There’s Something About Keith

We both noticed how energetic he was, how once he started talking he couldn’t stop, and how sleep evaded him. No worries though, I sleep trained him. Plus, kids are naturally talkative and hyper, right?

But he never slowed down. After being kicked out of two daycares, we had him evaluated. I already knew, but I wanted to hear the doctor say it. He had ADHD.

Now here’s where the story starts to fall apart

I ran straight towards the ADHD armed with books, natural medicine because our pediatrician refused to help him, and age-appropriate behavioral techniques. You ran in the other direction, straight to the door of denial.

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Days grew into weeks, months, and even years. Six years isn’t much time to some, but when a person feels like they’re carrying the load alone, it can seem like a millennium.

The feeling is familiar because I went through the same thing raising my daughter alone. I felt overwhelmed all the time. I feel that way now.

As the primary caregiver, I stay on top of his meds, homeschool him, and take him to the doctor’s appointments.

I know you can argue that since I don’t have a nine to five, I should be doing this anyway. I remember carrying the same load as a full-time working mom too.

And when you did participate…

Yes, you went to the doctor with us sometimes. You ‘yessed’ your way through the appointments, but the heavy part of the load rests on my shoulders.

When he’s having a bad day, I try to redirect. You punish him by sending him to bed.

If he talks back, I remind him that his behavior is inappropriate, you yell at him and say things he will repeat later when he’s frustrated.

Even when you excuse yourself from spending time with him, he loves you anyway.

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If I thought you would really listen to what I have to say, I’d tell you that you are creating an insecure man who will be afraid to share his feelings, think he isn’t good enough and may do inappropriate things to get attention.

But I’m not brave enough. What I am is strong. I’m strong enough to walk away and do it on my own.

I don’t want to, but his well being comes first. The only reason I haven’t walked away now is that much like a little girl, I have hope.

You’re not a bad person. That’s why I haven’t left yet.

Until then, I pray we can fix these broken wings.

Love,

Bonnie

Comments? Leave them below.

Thank you so much for reading this series! We appreciate your support during this month. If you missed any of the previous parts, you can catch up here:

Part 1 Part 2 Part 3 Part 4

Brilliant blog posts on HonestMum.com

Song Lyric Saturday with Matchbox Twenty

I’m such a 90s kid. I’m not ashamed! Another band I loved from that decade is Matchbox Twenty. Rob Thomas is wildly cute and the band was great.

I believe this song was somewhat about feeling like the end of the world was coming but yet the world had come so far. I loved the fast pace of the song.

When you and your life fall apart, it’s easy to feel like you may never feel whole again. You feel shattered and that is a terrible thing. I’ve been put back together twice- but the second time, I did the work myself. Matthew helped, but the work was all me.

Can we start a petition to bring this group back together?