We Have to Stick Together

Parenting

I’ve read a lot about parenting.

I’ve been a mom for fourteen years- Cameron was born in January 2005. (Yikes.)

There’s a lot of moms out there that try their hardest to demonstrate that parenting is easy.

I don’t know what planet they live on, but this is not easy.

Unless you are lucky enough to have nannies or other in-home help, you’re not sleeping much for a while after you have a baby. They aren’t the greatest sleepers. Some babies gracefully sleep all night at an early age and at that point, you may want to build a shrine to the parenting gods.

I almost did when Lily slept through the night before I went to work after her birth. Her brothers wouldn’t have thought about this.

The toddler and preschool years?

You love your kid, but are also ready to list them for sale on Etsy about three minutes after they terrify the cat.

This is the time where they learn so much and repeat things they probably shouldn’t. Break out the phones for those moments.

When kindergarten hits, be ready for tears.

Elementary school is full of fun and adventure… Just wait for the middle school. I’m currently there and, wow, is it full of things I never saw.

Pets, Stinky Feet and Sancti-Mommies

We’ve had a few pets along the way. Tiger was with us for a few months and sadly, we had to say goodbye after a tumor ruptured on his leg.

It was bad enough to make that decision, but it was worse to have to tell the kids. I couldn’t fix Tiger’s leg and keep him with us.

Tails and Miss Purr, along with the turtles, Biggie Smalls and Lightning, complete our house. We love them- they are family members.

Tails

Stinky feet are everywhere at my house. These kids are gross. They shower all the time.

The preteen and teenage stage…

Double yikes.

There’s so many things to explain- drugs, alcohol, mean girls and boys, sex, and the list goes on. As Ferris Bueller once said, “Life moves pretty fast.

He wasn’t kidding.

Then, there’s the moms that think their way is the best and that they are better than everyone else.

Whew….

They have tons to learn.

First of all, should they have a child with any kind of special needs, they are entirely screwed. Your mindset changes and throwing shade at other moms isn’t going to give you the support you are going to need.

Once these moms become known for their less-than-polite ways, who really wants to be within a mile of that?

I don’t.

As Ariana Grande says, thank you, next.

I’m all for research and opinions, but there are ways to express these respectfully. It’s possible to be nice and say what you think.

Parenting is the roughest job that many of us will ever have, unless you’re a first responder, logger, or something equally tough.

We need to stick together and remember all of us are doing the best we can. This goes for moms of newborns, elementary school-aged kids, even adults. It’s tough out there.

If you know a mom (or dad) who is struggling, try to help them out. It might be the best thing anyone does for them in a while.

Until next week, hang in there and try to laugh off your kid’s latest adventure.

Pics courtesy of pixels and pinterest

Book Review- “The Spark:A Mother’s Story of Nurturing Genius”

Kristine Barnett wrote this book about her son, Jacob, and it is amazing. I’ve read it three times, and I’m still in love with it. Jacob is incredibly gifted and also has autism.

He was diagnosed at two years old. Kristine and her husband were told that his autism was so severe that he would most likely never talk or even tie his shoes, but he beat the odds due to her dedication. She also ran an in-home daycare while raising him and his two younger brothers.

I identify with Kristine so much throughout the story- she and I both had small strokes at the age of 30, mainly due to extreme amounts of stress.

Mine, of course, was brought on by a migraine, but it came from stress. To this day, I struggle with speech issues (aphasia- look that one up, it’s a lot of fun), short term memory loss and migraines. To find out more about my stroke and its impacts, you can read Invisible Changes

Kristine realizes very early on that Jacob (he is known throughout the book as Jake) is showing signs of something, but isn’t sure what. Her mother is the one that realizes that it may be autism and hands her a list of signs.

Jacob was very fascinated with shadows, barely interacted with others, barely spoke and had other signs. I won’t spoil the story for you, but the shadow fascination leads to bigger things in the story. It’s pretty great. This kid’s very intelligent.

She has him evaluated and is devastated by the results. Her husband is in denial for a while but does come to accept the diagnosis.

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Julian was about four when we started seeing behaviors. I was still quite busy with Lily’s developmental delays and her assorted therapies at that time, so I wasn’t sure what to think. He became more aggressive and less of the affectionate, sweet little boy I knew.

He stopped hugging us. We lost the big kisses he gave us at night. He began throwing what I thought were big tantrums. He would scream and yell at his siblings, and I became very worried. I was heartbroken and worried about what to do, what I wasn’t doing.

We had him evaluated- I was actually relieved to get a diagnosis. It gave me a better idea of how to help him. He was diagnosed with ADHD (severe, combined) and autism in late 2011. That story can be found in Looking At the Bright Side

He still won’t hug us, and I miss that. Julian’s got an adorable smile that everyone loves, and I offer him hugs when he is upset. I know he probably won’t take it, but he knows he can have one whenever he needs it.

Kristine tells the story of her family in a very relatable way. I believe that’s why I like it so much. Even if you don’t have a child or know one with autism, it’s a great book to read. You can tell that she is very dedicated to her family and work. She gives so much hope to the reader in her story, even during the not-so-great parts of their lives.

My favorite quote from the book is “Certainly people with autism are in our world. They’re just not thinking about the things we want them to think about.” This is so true! I’ve worked with a lot of kids with autism, and they think about a lot of things I would never think about.

You would be surprised at the things they are capable of thinking about. They may not be able to verbalize it very well, or even at all, but they can still think of things we may not be aware of.

I also see this with Julian. We can be at dinner and watching the news and he’s thinking about a video he watched last week on YouTube. (I know this because I asked.) He once got an award for “Out of this world thinking” in elementary school. Let these kids, let all kids think and dream. You’d be surprised what they may come up with.

Pic courtesy of Google

Teens and Privacy: Where Do You Draw The Line?

The Challenges of Social Media

Teens are a challenge and a half. I’m just wandering into the pool of those challenges- most of them weren’t even on my radar until recently.

Everyone needs privacy. We need our space from others, physically and emotionally. We need our own space to grow and express thoughts. Teens need this for many reasons, one of the biggest reasons being that they are trying to figure themselves out. Remember how hard that was? Yikes.

Resist the urge to hover- this may lead to your child hiding things from you and/or lying. This can lead to worse things that you anticipated.

What Our Parents Didn’t Worry About

In the age of technology, privacy can get a bit worrisome. Parents have a lot more to worry about now than our parents did. We have to worry about Instagram and other social site pictures being too revealing and suggestive.

We have to worry about our kids being bullied because that ends tragically far too often. We worry about our kids being targeted while they play video games. These are just a few things that our parents never had to think about.

Black and white computer pic

Talking to Your Children

Opening up a conversation about privacy can be a bit awkward. It’s hard to start the conversation without being weird- you may have to look for an opening.

Do you already have an open relationship with your child? If you do, this may be a bit easier. If not, you may have to do a little more work to ease into it.

Go to my Freebie Page and find some helpful tips for talking to your kids. They require careful steps but in the end, everyone will be glad for the talk. The teenage years can get pretty awkward and a bit scary. Kids need to know they can talk to their parents about anything, including things that go on in the electronic world.

What if my child won’t talk or let me see what I ask for?

This is a rough one. Some kids aren’t talkers. I’ve got a couple. I’m not saying just let the quieter kids be- because they still need to know the importance of opening up and respecting this request. Losing their privilege can be a huge incentive to give you the information you want.

Assure your child that they can come to you if they are scared. That may be all they need.

There are some great apps for keeping an eye on what your kids do online- I use Net Nanny and it is super simple. It’s free and sends me a weekly summary of anything blocked or warned due to something the kids shouldn’t have looked up or sites they don’t need to be on. They also know about this and that they will lose all privileges if I get anything from this page.

As of this post, nothing has ever popped up in the whole time I have had this installed. We share a YouTube account and I can see everything they look up on Google. Some parents I know require their kids to charge devices together in one room after a certain time, access to devices (including phones) at any time they request it, or a little bit of both.

As of now, one of my kids has a phone, and it’s highly monitored. The tablets haven’t been much of a challenge so far.

I’m not a fan of breaking and entering into your child’s room. I don’t recommend this at all, except in one condition. That condition is if you are certain your child is in imminent danger and/or there is illegal activity involved. By all means, break down the door and go for it. This also applies for self-harm and other mental health reasons.

I’m hoping that I never have to sneak in my kids’ room and go through their things. I hope we are able to talk through things and come to a solution first.

What are your thoughts?


5 Facts About SVT

Parenting is challenging. Sometimes we are given those challenges out of nowhere. Cameron has been my “easiest” kid so far but yet gave us the biggest scare.

A Bit Of Background

Cameron was diagnosed with SVT in June 2015. This was discussed a bit in The Hardest Parts of Parenting

His diagnosis came after a game of basketball that led to an ER trip and scaring everyone in his elementary school in the process. Heart issues are very common in both Matthew and my families.

Cameron has been back to the hospital a few times since, due to more (smaller) episodes and for a small procedure to stop the episodes in 2017.

Due to some small episodes, he has had to be on a heart monitor for a month twice. I yelled at different customer service people over shipping complications with the stickers both times.

Mama Bear does make appearances from time to time, everyone. I try to be a nice person but when you mess with my son’s health…

Luckily, we live near a hospital that is amazing and Cameron has a cardiologist that spent his many years in school learning how to take care of kid-sized hearts.

The monitor came off both times without any issues being noted. He only goes back if anything comes up and as of yet, nothing. I will karate chop anyone, however, that even thinks of giving him anything caffeinated.

This includes energy drinks- no Monster drinks at this house. He currently takes two medications for migraines. One helps with his heart, so we consider it a two-for-one. The other is just for migraines.

Hospital pic

What IS SVT? Five facts

The last time I talked about this, I either said to Google it (because Google knows all) or I left a link, but this time, I’ll educate.

I decided on this because one of my greatest nightmares with Cameron is him collapsing during a basketball game and dying like I’ve seen numerous times on the news.

Most kids that die in that way during a sports game had a previously undiagnosed heart condition- either Long QT syndrome or sometimes SVT. Please bear with me, everyone, I’m not a cardiologist.

  1. SVT is an abbreviation for supraventricular tachycardia

This means that the electrical system in your heart works incorrectly, which can lead to an irregular heartbeat, chest pain, and in some cases, loss of consciousness. In Cameron’s case, he passed out in his first episode because his blood pressure dropped. His school immediately called me and an ambulance.

I couldn’t make it to the school in time, so the principal rode to the hospital with him, where I met them. In his second and more severe episode, he didn’t pass out, but he couldn’t walk and I had to get a wheelchair because I couldn’t carry his 12-year-old self in. I did make him stay awake in the car. He was in the hospital for four days that time.

The last few episodes weren’t as serious- but still not fun.

2. SVT can happen at any time, but episodes can happen years apart or never again.

I didn’t like hearing this part at all. It scared the hell out of me. I was afraid to let Cameron do anything for a while after his diagnosis because I was scared it might trigger an episode but he’s got to live his life, right?

He went from June 2015 to March 2017 between episodes before his procedure. That’s not bad. He’s had a few small ones since the procedure but nothing that required hospitalization.

3. There are some known triggers, but then it can also happen while you’re doing nothing or can wake you up from sleep.

Cameron has had smaller episodes during migraines, which is why he is now on medication for both.

He is also not allowed to drink caffeine except for small amounts if he needs it during a migraine, and he stays well hydrated during the summer. That seemed to trigger both episodes. The last episode was triggered by Ultimate Frisbee in gym class and I think he may have been overheated.

4. SVT can stop on its own sometimes requires action to slow the heart rate.

During one of Cameron’s episodes, his heart rate was well over 200 and I was petrified. I had to stand in the hallway, peeking through the curtain as the nurses and doctors worked on him.

There are small maneuvers that you can do on your own, like blowing through a straw or blowing on your thumb, but sometimes those aren’t effective. In the ER, most patients are given medications through IV.

Cameron had to be given medication three times before being transferred to a downtown hospital, where he was in the ICU for three days before spending a fourth in a regular room.

5. There is a procedure that can stop SVT.

Cameron was eligible for an ablation. His two episodes were severe enough that his cardiologist suggested it as soon as he went into the ICU. Cameron was awake but sedated, and his cardiologist went into his heart, found the tissue that was causing the bad heartbeat and burnt it.

Cameron stayed overnight and was home the next day. He missed a couple of weeks of gym class, but I don’t think he minded that very much. It has a high success rate, but Matthew and I were both very scared something would go bad.

I mean, it is small heart surgery. It went well, and Cameron is an active kid. He can play all the basketball he wants.

SVT can be a scary condition. I still worry when Cameron is outside playing with his friends or at school- his school is well informed. He knows what to do if his chest starts hurting and so does everyone that he spends time with. If you want more information on this condition please go here.

LGBTQ Kids: A Guide

Parenting is full of challenges. We face them everyday- food allergies, mental and/or physical disabilities, bullying, and the list goes on.

There’s a point in life in which our kids decide to date and none of us are ever ready for that- it freaks us out. This happens as early as 12 or 13 or can be years later.

Most of us don’t blink an eye at who they will date, because we just assume they will date someone of the opposite sex, right?

What Happens When They Don’t?

I’ve already thought this one out. I don’t care. As long as my kids find someone that loves and supports them, I honestly don’t care who they date. Race isn’t an issue for obvious reason, and that’s not the topic of the post.

I just want my kids to be happy with whoever they love. That’s it. If Lily brings home a girl and they get married, then I get to watch them say yes to the dress or whatever they wear.

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Being a teen is hard enough as it is today. There’s so much pressure to get great grades, fit in, get into a good college, work, and so on.

When you’re a 16 year old girl who likes other girls, it gets a bit harder to be “normal”. You wonder if others would still like you, even your own family. You grew up hearing slurs about homosexuals and you know it’s not going to be great if you tell your parents.

Then there’s the boys who want to date you and you know they won’t stay away forever. All you want is to find a girl that likes you and that you like back, but how does that work? It’s confusing and scary. Bullying is a thing, and LGBTQ teens have it harder.

Stats hrc.org, kids, LGBTQ

Coming out is scary. It’s rough. The average age is 17, much younger than it used to be according to a British study found on Everyday Feminism

Teens are smart- they know the risks of telling their families something this big. Some families are accepting, and some families are ready to kick their kids right out of the house, which is a shame.

It’s heartbreaking to know that some kids feel they have to hide this part of themselves, because it can lead to drug and/or substance abuse issues, along with mental health issues, like depression and anxiety. A kid can only mask so much for so long. It does get better, time goes by, people do open their minds to new things.

Sometimes the people they think will have horrible reactions will have the opposite reaction. The negative messages are also an issue- they can send a message that a kid is a bad person, or is “going to hell”, etc. This can just add to already negative thoughts that a kid can have about themselves.

It gets better when LGBTQ kids find others like them- online, in school, through other friends, in other ways. It does help that many LGBTQ kids are out to their friends and classmates. Those friends and classmates, for the most part, are accepting, and can be a great source of support.

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What Can Parents Do?

  • Let them know you love them. I’m pretty sure this is the biggest part of accepting your child, no matter what. They need to know this. The scariest thing to many LGBTQ kids is coming out. Once they know they have parental support, there is a huge sense of relief. Be as open minded and present as you can be, even if you aren’t quite sure what to do.
  • Research. Parenting requires a lot of thinking and reading. We don’t always know what to do. That’s why the Internet exists. There are quite a few websites for parents of LGBTQ kids, including Hopkins Medicine
  • Talk about it. This doesn’t mean hound about their sex life, because that’s definitely awkward for everyone involved, but let them know you are there when they need you, if they have questions, etc.
  • Remember this is not a “phase”, there is no “cure”, and there is nobody to “blame”.
  • Watch out for bullying at school. It’s a reality that LGBTQ kids are bullied at school and other places. If you need to, get involved with the school. You can read Bullying: A Closer Look for more ideas and resources.
  • Talk to someone if you feel overwhelmed.

Female couple, acceptance

The world of teenage dating can get pretty complicated, this is just a different road. It’s possible to walk together with your child. Cheer them on!

Pics courtesy of Unsplash

Statistics pics courtesy of hrc.org

Info can be found on:

Everyday Feminism

Hopkins Medicine