Teens and Privacy: Where Do You Draw The Line?

The Challenges of Social Media

Teens are a challenge and a half. I’m just wandering into the pool of those challenges- most of them weren’t even on my radar until recently.

Everyone needs privacy. We need our space from others, physically and emotionally. We need our own space to grow and express thoughts. Teens need this for many reasons, one of the biggest reasons being that they are trying to figure themselves out. Remember how hard that was? Yikes.

Resist the urge to hover- this may lead to your child hiding things from you and/or lying. This can lead to worse things that you anticipated.

What Our Parents Didn’t Worry About

In the age of technology, privacy can get a bit worrisome. Parents have a lot more to worry about now than our parents did. We have to worry about Instagram and other social site pictures being too revealing and suggestive.

We have to worry about our kids being bullied because that ends tragically far too often. We worry about our kids being targeted while they play video games. These are just a few things that our parents never had to think about.

Black and white computer pic

Talking to Your Children

Opening up a conversation about privacy can be a bit awkward. It’s hard to start the conversation without being weird- you may have to look for an opening.

Do you already have an open relationship with your child? If you do, this may be a bit easier. If not, you may have to do a little more work to ease into it.

Go to my Freebie Page and find some helpful tips for talking to your kids. They require careful steps but in the end, everyone will be glad for the talk. The teenage years can get pretty awkward and a bit scary. Kids need to know they can talk to their parents about anything, including things that go on in the electronic world.

What if my child won’t talk or let me see what I ask for?

This is a rough one. Some kids aren’t talkers. I’ve got a couple. I’m not saying just let the quieter kids be- because they still need to know the importance of opening up and respecting this request. Losing their privilege can be a huge incentive to give you the information you want.

Assure your child that they can come to you if they are scared. That may be all they need.

There are some great apps for keeping an eye on what your kids do online- I use Net Nanny and it is super simple. It’s free and sends me a weekly summary of anything blocked or warned due to something the kids shouldn’t have looked up or sites they don’t need to be on. They also know about this and that they will lose all privileges if I get anything from this page.

As of this post, nothing has ever popped up in the whole time I have had this installed. We share a YouTube account and I can see everything they look up on Google. Some parents I know require their kids to charge devices together in one room after a certain time, access to devices (including phones) at any time they request it, or a little bit of both.

As of now, one of my kids has a phone, and it’s highly monitored. The tablets haven’t been much of a challenge so far.

I’m not a fan of breaking and entering into your child’s room. I don’t recommend this at all, except in one condition. That condition is if you are certain your child is in imminent danger and/or there is illegal activity involved. By all means, break down the door and go for it. This also applies for self-harm and other mental health reasons.

I’m hoping that I never have to sneak in my kids’ room and go through their things. I hope we are able to talk through things and come to a solution first.

What are your thoughts?


5 Facts About SVT

Parenting is challenging. Sometimes we are given those challenges out of nowhere. Cameron has been my “easiest” kid so far but yet gave us the biggest scare.

A Bit Of Background

Cameron was diagnosed with SVT in June 2015. This was discussed a bit in The Hardest Parts of Parenting

His diagnosis came after a game of basketball that led to an ER trip and scaring everyone in his elementary school in the process. Heart issues are very common in both Matthew and my families.

Cameron has been back to the hospital a few times since, due to more (smaller) episodes and for a small procedure to stop the episodes in 2017.

Due to some small episodes, he has had to be on a heart monitor for a month twice. I yelled at different customer service people over shipping complications with the stickers both times.

Mama Bear does make appearances from time to time, everyone. I try to be a nice person but when you mess with my son’s health…

Luckily, we live near a hospital that is amazing and Cameron has a cardiologist that spent his many years in school learning how to take care of kid-sized hearts.

The monitor came off both times without any issues being noted. He only goes back if anything comes up and as of yet, nothing. I will karate chop anyone, however, that even thinks of giving him anything caffeinated.

This includes energy drinks- no Monster drinks at this house. He currently takes two medications for migraines. One helps with his heart, so we consider it a two-for-one. The other is just for migraines.

Hospital pic

What IS SVT? Five facts

The last time I talked about this, I either said to Google it (because Google knows all) or I left a link, but this time, I’ll educate.

I decided on this because one of my greatest nightmares with Cameron is him collapsing during a basketball game and dying like I’ve seen numerous times on the news.

Most kids that die in that way during a sports game had a previously undiagnosed heart condition- either Long QT syndrome or sometimes SVT. Please bear with me, everyone, I’m not a cardiologist.

  1. SVT is an abbreviation for supraventricular tachycardia

This means that the electrical system in your heart works incorrectly, which can lead to an irregular heartbeat, chest pain, and in some cases, loss of consciousness. In Cameron’s case, he passed out in his first episode because his blood pressure dropped. His school immediately called me and an ambulance.

I couldn’t make it to the school in time, so the principal rode to the hospital with him, where I met them. In his second and more severe episode, he didn’t pass out, but he couldn’t walk and I had to get a wheelchair because I couldn’t carry his 12-year-old self in. I did make him stay awake in the car. He was in the hospital for four days that time.

The last few episodes weren’t as serious- but still not fun.

2. SVT can happen at any time, but episodes can happen years apart or never again.

I didn’t like hearing this part at all. It scared the hell out of me. I was afraid to let Cameron do anything for a while after his diagnosis because I was scared it might trigger an episode but he’s got to live his life, right?

He went from June 2015 to March 2017 between episodes before his procedure. That’s not bad. He’s had a few small ones since the procedure but nothing that required hospitalization.

3. There are some known triggers, but then it can also happen while you’re doing nothing or can wake you up from sleep.

Cameron has had smaller episodes during migraines, which is why he is now on medication for both.

He is also not allowed to drink caffeine except for small amounts if he needs it during a migraine, and he stays well hydrated during the summer. That seemed to trigger both episodes. The last episode was triggered by Ultimate Frisbee in gym class and I think he may have been overheated.

4. SVT can stop on its own sometimes requires action to slow the heart rate.

During one of Cameron’s episodes, his heart rate was well over 200 and I was petrified. I had to stand in the hallway, peeking through the curtain as the nurses and doctors worked on him.

There are small maneuvers that you can do on your own, like blowing through a straw or blowing on your thumb, but sometimes those aren’t effective. In the ER, most patients are given medications through IV.

Cameron had to be given medication three times before being transferred to a downtown hospital, where he was in the ICU for three days before spending a fourth in a regular room.

5. There is a procedure that can stop SVT.

Cameron was eligible for an ablation. His two episodes were severe enough that his cardiologist suggested it as soon as he went into the ICU. Cameron was awake but sedated, and his cardiologist went into his heart, found the tissue that was causing the bad heartbeat and burnt it.

Cameron stayed overnight and was home the next day. He missed a couple of weeks of gym class, but I don’t think he minded that very much. It has a high success rate, but Matthew and I were both very scared something would go bad.

I mean, it is small heart surgery. It went well, and Cameron is an active kid. He can play all the basketball he wants.

SVT can be a scary condition. I still worry when Cameron is outside playing with his friends or at school- his school is well informed. He knows what to do if his chest starts hurting and so does everyone that he spends time with. If you want more information on this condition please go here.

LGBTQ Kids: A Guide

Parenting is full of challenges. We face them everyday- food allergies, mental and/or physical disabilities, bullying, and the list goes on.

There’s a point in life in which our kids decide to date and none of us are ever ready for that- it freaks us out. This happens as early as 12 or 13 or can be years later.

Most of us don’t blink an eye at who they will date, because we just assume they will date someone of the opposite sex, right?

What Happens When They Don’t?

I’ve already thought this one out. I don’t care. As long as my kids find someone that loves and supports them, I honestly don’t care who they date. Race isn’t an issue for obvious reason, and that’s not the topic of the post.

I just want my kids to be happy with whoever they love. That’s it. If Lily brings home a girl and they get married, then I get to watch them say yes to the dress or whatever they wear.

Lgbt flag, kids, parenting

Being a teen is hard enough as it is today. There’s so much pressure to get great grades, fit in, get into a good college, work, and so on.

When you’re a 16 year old girl who likes other girls, it gets a bit harder to be “normal”. You wonder if others would still like you, even your own family. You grew up hearing slurs about homosexuals and you know it’s not going to be great if you tell your parents.

Then there’s the boys who want to date you and you know they won’t stay away forever. All you want is to find a girl that likes you and that you like back, but how does that work? It’s confusing and scary. Bullying is a thing, and LGBTQ teens have it harder.

Stats hrc.org, kids, LGBTQ

Coming out is scary. It’s rough. The average age is 17, much younger than it used to be according to a British study found on Everyday Feminism

Teens are smart- they know the risks of telling their families something this big. Some families are accepting, and some families are ready to kick their kids right out of the house, which is a shame.

It’s heartbreaking to know that some kids feel they have to hide this part of themselves, because it can lead to drug and/or substance abuse issues, along with mental health issues, like depression and anxiety. A kid can only mask so much for so long. It does get better, time goes by, people do open their minds to new things.

Sometimes the people they think will have horrible reactions will have the opposite reaction. The negative messages are also an issue- they can send a message that a kid is a bad person, or is “going to hell”, etc. This can just add to already negative thoughts that a kid can have about themselves.

It gets better when LGBTQ kids find others like them- online, in school, through other friends, in other ways. It does help that many LGBTQ kids are out to their friends and classmates. Those friends and classmates, for the most part, are accepting, and can be a great source of support.

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What Can Parents Do?

  • Let them know you love them. I’m pretty sure this is the biggest part of accepting your child, no matter what. They need to know this. The scariest thing to many LGBTQ kids is coming out. Once they know they have parental support, there is a huge sense of relief. Be as open minded and present as you can be, even if you aren’t quite sure what to do.
  • Research. Parenting requires a lot of thinking and reading. We don’t always know what to do. That’s why the Internet exists. There are quite a few websites for parents of LGBTQ kids, including Hopkins Medicine
  • Talk about it. This doesn’t mean hound about their sex life, because that’s definitely awkward for everyone involved, but let them know you are there when they need you, if they have questions, etc.
  • Remember this is not a “phase”, there is no “cure”, and there is nobody to “blame”.
  • Watch out for bullying at school. It’s a reality that LGBTQ kids are bullied at school and other places. If you need to, get involved with the school. You can read Bullying: A Closer Look for more ideas and resources.
  • Talk to someone if you feel overwhelmed.

Female couple, acceptance

The world of teenage dating can get pretty complicated, this is just a different road. It’s possible to walk together with your child. Cheer them on!

Pics courtesy of Unsplash

Statistics pics courtesy of hrc.org

Info can be found on:

Everyday Feminism

Hopkins Medicine

A Quick Guide on Redshirting for Kindergarten

Kindergarten.

For many families, this is a day that many kids and parents have been looking forward to for a long time. There might be a few tears on both sides, but in general, it’s a big step towards growing up for a child.

Some parents, however, hesitate at this idea. Nine percent of kindergarten-age children are “academically redshirted” each year, according to Very Well Family

This is the decision to hold a child back a year, even if they are the correct age for school. The cut off is different by state, and even by county. For example, the cut off in Jefferson County, Kentucky is now August 1. It was still October 1 when Lily went to kindergarten in 2014.

Blocks

The School Debate

Cameron and Lily have January and February birthdays, so they are among the first to have birthdays in their classes. Cameron finds it hilarious that when he turns 15, he will be one of the first freshmen to do so. Lily will be 12 in the middle of her 6th-grade year. Julian, however, has a July birthday. He is usually one of, if not the youngest, in his class. He will graduate at 17, which he thinks is great. However, I almost redshirted him.

Julian has always been small for his age, even before the Vyvanse stunted his growth. That wasn’t a concern, because he can most certainly take care of himself. If not, Cameron is a good backup.

When Julian was about to start kindergarten, however, he had not yet been diagnosed and I wasn’t sure he was ready- socially. He is a very smart kid, but he was aggressive, hyper and destructive. I was afraid kindergarten would be a disaster. His second year of preschool was not going well- we got notes once a week about his behavior, and most of them were not great.

At home, he was so aggressive towards his siblings that they wouldn’t even play with him. This was a huge change from the boys getting into things together. Lily couldn’t talk well, but she knew to stay away.

I debated for months on whether to send him to kindergarten or not. I went ahead with it because I didn’t want whatever issues he had to further hold him back. I thought that he would get worse if I held him back. Plus, I didn’t think a third year of preschool would go well if that was even a possibility.

Julian was enrolled and I hoped for the best.

He hid under the cafeteria table at kindergarten orientation. I have never forgotten this. I was embarrassed, horrified and anxious at the same time. I had to peel his small hands off the table legs to get him to go with the teachers and other kids.

Kindergarten was as rough as I had anticipated, complete with meltdowns at school. He did get a full neuropsychological evaluation in November 2011 and thankfully was diagnosed with ADHD (combined) and autism (at the time, Asperger’s, now referred to as High Functioning Autism).

He was also medicated for ADHD. This helped a lot. His school helped by creating a 504 Plan, which assisted with behavioral issues. He later received an IEP in the 5th grade.

Am I glad that I sent Julian to school on time? Yes. Had we held him back, I think his issues may have gotten worse. He would have been bored, and that would have created a lot more problems for everyone.

Bus pic

Do You Need a Red Shirt?

Of course, this is an individual decision, and it’s not an easy one. Let’s look at the pros and cons of redshirting a child.

Pros:

  • Less likely to need special education services
  • Less likely to be singled out for negative behavior because they had more time to work on social skills at home/preschool
  • Better motor skills
  • Increased social confidence
  • Reading and math are usually at or above where their peers are

Cons:

  • In the adolescent years, difficulty making and maintaining friendships
  • losing a year of special education services (if needed) due to starting school late
  • May mask learning issues
  • Another year of preschool tuition

Questions to ask yourself while debating the issue:

  • What are the other factors, besides age, makes you feel that your child isn’t ready for kindergarten?
  • If your child has been to preschool, how is that going? Does the teacher feel that your child is ready? Are there concerns?
  • What does your district expect your child to know before going to kindergarten? You can look on their website for this information. Some, like JCPS (Jefferson County Public Schools), have kindergarten readiness programs during the summer to make sure kids are ready.
  • If your child does sit out a year, what will they do during that time to be ready for kindergarten next school year?
  • Does your child have any delays or other developmental issues? If so, can these be addressed once they are in school?

There is so much to consider before sending your child to school, and this may add to the anxiety. This topic is becoming more popular among parents of young children. Take time to think about it if you need to, consult with outside professionals if necessary. Most of all, do what is best for your child.

Did you redshirt your child? Did it go well, or did you regret the decision? Let me know in the comments!

Pics courtesy of unsplash

Information courtesy of Very Well Family

My Fearless Leader

There’s a common saying in the autism parenting community that I love: “Autism is a journey I never planned but I sure do love my tour guide.”

In honor of Autism Awareness Month, this post is for Julian. He is now 12, almost as tall as me, and is still my lookalike. Most of all, he is what his psychiatric nurse practitioner calls “well-loved”.

Firetruck pic

In a firetruck at the 2018 FEAT Autism Walk

Back to the Beginning

When he was five, I had no idea what we were in for. I just knew that he needed me and more help than I could give him. I doubted myself so much because even with all of my knowledge and work, I still couldn’t manage him.

I dreaded going out in public because it was a risk- he was a runner. What if he ran off? What if he had a meltdown? His meltdowns were loud and lasted at least a half hour. I made my trips as short as possible. I went out alone when I could so I didn’t have to worry about chasing a very fast kid.

School was a tougher topic. He struggled to sit through kindergarten and didn’t like his teacher but loved her assistant. Even after his ADHD and autism diagnosis and medication, he continued to stay away from his peers. He remained quiet, barely speaking to anyone. Julian was in his own world, both at home and at school.

It turns out that’s a personality trait- he is my quietest child. He won’t talk to people he doesn’t know and needs prompting sometimes to speak to those he does. Eye contact is non-existent and I don’t force it. As long as I see that he’s looking at my face, I know he is listening.

The Road to Now

Julian has spent a lot of his childhood in therapy. He started with a social worker in 2013, a psychiatrist, who recommended group therapy while he was in third grade, and now he sees Ann, his nurse practitioner, once a month.

Group therapy helped more than anything else. I had to pay out of pocket for it because insurance wouldn’t cover it.

I didn’t care.

It was worth every penny. He learned skills that he can use for the rest of his life- sharing, talking about himself in a group, handling challenging emotions, and other topics.

Julian struggles with empathy, even after that was a theme in the group. We work on this a lot. He may say something that hurts another person’s feelings but doesn’t get why.

I explain to him why what he said was not so nice and that he needs to think things out a bit more before speaking (hilarious for me to say that because I am the wrong parent for this) and apologize. Sometimes this works, sometimes I lose him.

Julian also developed a sense of humor. For a while, we weren’t sure if he had one. He didn’t get sarcasm and was so serious. I had to explain jokes to him.

He has been fearless pretty much since he could walk. There have been incidents that resulted in broken bones, staples, stitches and other assorted injuries. None of these things stopped him. As he’s gotten a little older, he has learned to hesitate a little, but he’s still the first to get into something.

Birthday pic

Eating his 4th birthday cake with a cast

Humor finally hit him and I was thrilled. His humor is dry but we appreciate it. Sarcasm is still not a thing for him but it’s not for everyone.

Julian thinks in incredibly concrete ways. He eats certain foods (pretzels are life) in a certain way. He thinks things should happen in a particular order and doesn’t always get why it doesn’t happen like he thinks it should.

However, he’s very smart. Seventh grade has gone well- his IEP focuses on his handwriting (it needs improvement) along with other goals. His grades are good and his best subjects are math and science. He’s always been talented in those subjects.

In many ways, Julian is like most 12-year-olds- he loves playing on his Xbox 360 and riding his bike. He thinks the prank videos on YouTube are the funniest things he’s ever seen. There are just a few quirks involved.

I’m Not an Expert

I read a lot about autism. I worked with kids all over the spectrum for almost five years. I’ve been injured in the process but loved the work. It truly changes you and how you see the world.

Still, I am not an expert. I do not know what it is like to be Julian. I do not know what it is like to be in the lunchroom full of noisy kids and have to block it out so you can eat and try to talk to your friends. I do not know what it feels like to be super bored for a minute or two in class but yet, it feels like forever.

I do, however, know the feeling of wanting to hug a wonderful child who won’t let me because he hates the feeling. I know exactly how it feels to watch your child yell loudly over the shape of pasta because it’s not the right one. This has happened, but not in years.

I’ve often wanted to take a trip inside Julian’s mind, but I know this is impossible. Since I can’t, I try hard to remember where he is and help him through his needs. We don’t let him have everything he wants, because that simply isn’t how the world works. We do, however, make accommodations when we can.

Julian has been an adventure to raise. The road has been a bit bumpy but I will stay with him forever.

Therapy pic

Yay! He finished therapy (2015)

If you are the parent/caregiver of a special needs child, how has the path been for you? Please share in the comments.