RA and Me

I wrote a post a while back about having chronic illnesses and being a mom. Chronic Conditions and Momming was written before my rheumatoid arthritis diagnosis.

1. My older sister has lupus and we had the same rheumatologist at one point. Once we discovered this, we thought it was hilarious. There’s a lot of rheumatologists in Louisville, and we ended up with the same one?

2. My grandfather had severe RA. He died in 2016 at the age of 83. His hands were curled up from the severe joint deformities. He took medications for it, but still had issues that weren’t able to be reversed.

3. I am currently taking a mild medication daily. I had to wait for my thyroid meds to be regulated before I could start RA meds. That sucked but things are good in this area. (Short version: I’m on Levothyroxine due to a partial thyroidectomy in 2017.) Joint pain is REAL.

4. My biggest issues? Joint pain in my hands, knees, and hips. Like many others, I’m super stiff in the mornings and it takes at least an hour to loosen up. Hot showers help. Moving around does help but also hurts. Eventually, the stiffness goes away. Usually. If it doesn’t, then it’s a bad pain day, which leads me to #5.

5. I don’t like taking pain meds. They make me tired and nobody has time for that mess. I usually won’t take them unless I can barely move. I’ll use a heating pad, massage, stretch, etc. The pain meds I do have, however, are non-narcotic.

My doctor is pretty smart- probably not a good idea to prescribe a recovering alcoholic hardcore narcotics. She probably enjoys having a license to practice.
Rheumatoid arthritis sucks. I hate missing out on things because I’m tired, hurting, or both.

Pic with Cameron

It’s possible to live life with chronic conditions. I have two. Some days are just worse than others. I can get through them with humor and my support system.

If you have a chronic condition, how do you get through it?

A Talk With My Mom

My mom and I were talking today (2/6/19) and we were discussing the death of a soap opera actor that she really liked. It’s been suspected that it was due to alcohol and I told her that I had once been close to, if not, actually had alcohol poisoning.

“Why didn’t you tell me it was that bad?”

I didn’t really have an answer.

I had to think for a minute.

“I don’t know. I already had a lot going on. I was so messed up for a while and I didn’t want you to worry more.”

It’s called shame, y’all. It’s a big topic in recovery.

My mom hit me with that “don’t bullshit me” look that I’ve gotten about a thousand times in my life.

“No, seriously, Wrae. You can come to me with things like that.” She actually looked hurt. My mom’s not much for feelings so that must have really bothered her.

The Sunken Place

When you’re in the deep, dark place that is alcoholism, or even binge drinking, there is not space for telling many people how bad things are. This might even include your mom.

There is mainly room for drinking. The feelings you have go away, at least for a while. The alcohol clears out the pain and if you’re lucky, maybe you won’t remember the dumb things you did.

The emotions you’re trying to drown out are usually big. They feel too big to manage, and sometimes the usual coping skills just don’t work. I drank well before my life took a huge left turn, but Jake’s death destroyed me. The grief was too much to take.

There isn’t much talking. You don’t want to talk about why you drink- but telling someone about a wild night of drinking might be fun. It’s so hard to face up to the damage you are doing to yourself and potentially others. That day does come, however. My day came and went two years ago. You can read that story in Two Years of Sobriety

Since that day, I’ve finished therapy and started going to a Yoga 12 Step for Recovery class on Sundays. It’s one of the best things I do all week. I struggle with reaching out for help when I need to talk.

Writing helps a lot and I am able to get my thoughts that way, but I know talking is better sometimes. Honestly, it gets exhausting. When I get done talking about how I feel, I’m drained. I need a nap. I used to leave therapy tired as hell, especially if I had been crying.

All The Feels

I’m still a work in progress. I know I have a lot of people that I can talk to. It’s just a matter of speaking. Doing so requires lots of feelings- shame for even having this to deal with, guilt for having to unload on people who have dealt with my problems for over so many years, and just having to process whatever might be under the surface.

Can you tell this is not my favorite thing to do?

Quote courtesy of Pinterest

Kids: Is It All In the Timing?

I’ve had a lot of time to think about this topic. Fourteen years, in fact. Cameron turned fourteen recently and I had just turned 22 when he was born. Fast forward and here we are. He has two siblings and I have gray hair.

The Clock Goes “Tick Tock”

Timing can be interesting- eighteen months is all that separates my kids in age. That was not planned, as I’ve discussed in previous posts. Three kids in three years is not for the weak or people who like to sleep.

I like my sleep and I am so damn glad that my kids do. Once everyone slept all night, it’s been great around here unless someone is sick. Julian needed some help in this department- I’d love to shake the hand of whoever discovered that Clonidine helps with sleep. He sleeps great these days.

Figuring Out What Works

Matthew and I really didn’t have much of a plan- we just knew we wanted kids. He wanted two, I wanted four, and then Cameron showed up in 2005.

Matthew got two. I changed my mind. Forget four- Cameron was a difficult baby and I was not up for a repeat. Eighteen months later, I got “the Buddha Baby”, known as Julian. Eighteen months after that, Lily made her appearance and I shut down the baby factory.

I was done. You can read Rewind and Fast Forward to get the full story.

What worked for us doesn’t work for everyone. Some prefer to have kids early. Lily was born two months after my 25th birthday. I had hoped to be done having kids by 30, so I was done a whole 5 years early.

I was worried about the chances of birth defects, the extra wear and tear on my body (which happens no matter how old you are) and my energy levels. I also just wanted to get this part of my life over with. Pregnancy and the younger years of a child’s life are hard. Might as well be young and get it done, right?

The money part isn’t fun to figure out. I think that if you’re a bit older when you start having kids you may have a better shot at being financially stable. I’ve read that many older parents are more patient- in that case, I’d be ready for menopause before I had kids.

Two main worries for women that wait until later is the chances of birth defects or difficulties with getting pregnant in the first place. Luckily, there are maternal-fetal specialists and fertility specialists that can assist with these issues.

The Big Questions

Should you start early? Should you wait a few more years? I think it is up to each couple to decide what is best for them. Having kids is a huge, life-changing decision. Don’t go into it lightly.

Look at where you are in your life- financially and emotionally. How is your health? How will your life change if you do decide to have a child? These are just a few questions to ask yourself.

This post is not meant to talk anyone into or out of having kids at any point- just to bring a few thoughts to the surface.

Did you have kids at an early or late age? How do you think it impacted your life? Do you wish you had done it differently?

Pics courtesy of: Unsplash

Twin Mummy and Daddy

Book Review: “The Warner Boys: Our Family’s Story of Autism and Hope”

This month’s book review is early, but thanks to the holidays and other events, this should have been done long ago. My apologies to Sabrina, the publicist for the Warners. I forgot to mention this to her, but I’m a Seahawks fan. #GoHawks!

Curt Warner is a former Seahawks running back who met his wife, Ana, while out shopping. Ana is from Brazil and was working to make ends meet after moving back from her home country. They quickly fell in love, got married and started a family.

After the devastating loss of their first son, Ryan, Ana and Curt welcomed another son, Jonathan, then twins, Austin and Christian. Later, they adopted a daughter, Isabella.

The boys began to show signs of autism as early as toddlerhood but were not officially diagnosed until elementary school.

It’s extremely difficult to hear that sort of diagnosis, so it is not surprising that Curt and Ana were devastated. They dealt with their sons’ autism differently.

Ana was able to stay at home while Curt worked and immersed herself in trying for a cure. When that wasn’t a possibility, she tried for perfection. This led to a crippling depression that made her suicidal at one point.

Austin and Christian faced struggles that many kids with autism do- lack of danger awareness, obsessions (Disney movies), issues in school and diet issues.

Jonathan, their older brother, is also featured in the book. I liked this- siblings of children of special needs should also have a voice. Sometimes they intentionally get left out.

Ana and Curt tell their story alternately, with a lot of heart and description. Their sons went through good and bad times, like many other children. The good thing is, they never lost hope in them. Austin and Christian will be taken care of their whole lives and for that, they are very lucky young men.

Any parent that needs a word of encouragement through a rough patch can get just that from this novel.

This is my Review of the Month for the review collection on LovelyAudiobooks.info